What a year! One year ago today I wrote my first blog post, inspired by anger and frustration (as are most of my posts) I decided to give the world the resource I wish I had when I was first diagnosed. As if being a teenager isn’t hard enough my body took it upon itself to age 60 years. Days were filled with school and pain, exams and pain, hormones (aaaargh!) And pain along with a whole host of other things that are your world between the ages of 13 -19. Then when I was 18, my body kicked it up another notch. Not content with the pain I was already in, a back injury left it difficult to walk and I adopted a walking stick as a permanent extension to my arm. I started university and subsequently dropped out a few months later, I pretty much only left the house to go to the doctors or my boyfriend’s house. Basically my life had hit a low point.
My mam had taken me swimming, and after half an hour of bobbing along I got out to shower. I used the disabled washroom as I had a few times before, there were aids for me and most importantly a chair to sit on whilst showering. It was when I could barely lift my arms to wash my hair out of pure fatigue that I started thinking how unfair it was that this was my life now whilst my friends were out enjoying life and following my dreams. I started thinking how I could explain the baffling world of fibromyalgia to those fortunate enough not to have it. But to do this effectively I had to expand on my initial thought which was ‘it sucks.’
Thus, the Pain Princess was born! I told my story because it needed to be told. It is sad and funny and strange and tumultuous but I felt better for telling it. Truthfully, I didn’t think anyone would ever read my blog. Why would anyone care what I have to say? Why would someone be interested in the world according to me? – I still think this now, it baffles me that fibro folk from all over the globe have decided to listen to what little old me has to say! I wanted to validate what others were feeling about their condition but instead I received a whole heap of validation from beautiful strangers. Wonderful people like you.
There are a lot of things that are really rubbish about fibromyalgia, A LOT! But because of this truly sucky condition, I have made hundreds of friends on support groups and through my blog, none of whom I have ever met but they’ve supported me through the toughest, roughest of times. We are all connected by this stupid thing called fibromyalgia, whether we suffer from it, or just know of someone that does. And for this connection I am grateful and thankful to fibro.
Most importantly, I want to say thank you to you, my dear readers, the friends I have never met, but no less than true friends. Thank you to the fibro warriors that encouraged me to tell my friends and family that I was writing a blog. Thank you for believing in me when I didn’t, and thank you for making this blog a success.
Much love to you all 💕